现金海德基金会：“癌症，我希望你得癌症死！” - 亚搏app软件,亚搏app手机版,亚搏手机版APP下载

Cashy、Cashy Cashy。哦，你是如何改变世界的，即使只是一次通过一个人。我认为，任何一个看到你甜美的笑脸或听到你富有感染力的笑声的人，都会听到你讲述自己多么勇敢、坚强、多么艰苦地战斗的故事。在你4年的生命中，你比我认识的任何人都要努力奋斗，也许以后也会如此。

越来越多的人发现你惊人的日常故事，希望人们分享和传播它，以及像野火在风中翻滚，在其路径抢的一切，传播卡希的儿童癌症的认识。这正是我们所需要的，意识对于被接管我们的孩子和亲人这种可怕的，凶残的疾病。

有时候，想到人们对儿童癌症知之甚少，我就很生气。为什么?这是我们孩子的主要杀手之一。癌症。在你被诊断出来之前，我甚至不知道儿童癌症，当然我知道它的存在，但我不想了解更多。也许我否认自己从未面对过如此致命和毁灭性的东西，更不用说像你这样完美的小宝贝了。

怎么能这样的东西在当今世界普遍不可靠的治疗方案。而我说得可靠，就像救人一样。化疗和放疗都不能治愈。就像我们父母把孩子扔进刑讯室，让医生和护士随心所欲地对待他们一样。让我们给这些生病的孩子们注射成人化疗药物，以儿科的剂量，辐射他们的整个身体，直到他们呕吐，直到他们的头发脱落，直到他们的免疫系统不能再服用。他们身体的每一个部位都在从有毒的化疗中脱皮，在化疗药物通过毛孔渗透，导致严重烧伤后，需要每8小时洗一次澡来洗掉皮肤上的化疗药物。然后他们要么因为白种人数量少而感染，要么他们打完这一轮然后恢复过来再做一遍。这是我们给孩子最好的吗?这是不可接受的。我们的国家辜负了我们。失败了。

我觉得如果我们能重新来过，我会选择正确的方式。你会立刻被注射大剂量的大麻油。你今天可能还在这里，我知道这是真的。一个8个月大的婴儿刚刚用大麻油打了一个巨大的脑瘤，一天两次在他的奶嘴上。他的癌症消失了!这是惊人的。我知道如果我们不做高剂量化疗，不做辐射，你可能还在这里。但我们不知道我们现在知道的一切。迈克做了，他知道这是个坏主意。但当你看到你的宝宝长了4.5厘米的脑瘤时，你会惊慌失措，就好像你会按命令去做一样。 Like the Jews who were put to death by the Nazi’s. They did what they were told and it was their demise. We listened to the doctors, although we didn’t trust very many of them (geez, some of them you wonder how they even passed the medical board exam), we listened and put you through the recommended gauntlet they called pediatric cancer treatment for a stage 4 PNET brain tumor. Surgery, 6 rounds of high dose chemo with three stem cell transplants. Not to mention septic shock, bleeding lungs and life support as possible side effects from those horrific treatments.
我很抱歉我们让你经历了那些乱七八糟的事情。我真的很抱歉。我希望你知道我们竭尽全力让你活着。
I’ll never forget those two months after your brain surgery when you were blind and so scared and dependent on both our daddy and I. The grueling brain surgery where we waited for you for 4 hours, we waited to hear anything at all promising from your world renowned brain surgeon. He came back half way through surgery, he was cold, had a stone cold face as he took us back into a tiny room to talk to us. All he could tell us was your tumor was in the blue cell tumor group and he was only able to remove 10% of your tumor. All that for only ten percent? 10 percent that grew back plus in the weeks later to 4.8cm.

你被转到ICU后，我们接到电话回来，情况稳定了。我记得在PICU迷宫中行走，看到那些躺在敞开的床上和婴儿床上的虚弱的婴儿，他们的身体里也潜伏着可怕的东西。我们发现你时，你睡得正香，浑身是血，切口处的头发也被刮掉了。你看起来是那么渺小和无助，我所能想到的就是为什么这些会发生在你身上，发生在我们身上?这太不公平了。或者可怜的婴儿无助地躺在医院的病床上，静脉注射器和动脉血管都进入了他的小静脉。他们一直在测量你的钠含量因为手术后你的钠含量总是不正常他们必须密切监测。这就是开始你的新爱和对水的渴望，以及所有你能得到的水。他们不会让你喝水，因为这会进一步稀释你体内的钠含量。但是你太渴了，你哭喊着，你会痛苦地指着你的嘴想要更多的水。他们让我们用海绵给你水的味道。 You hated this, until you figured out that if we soaked the sponge enough with water you could suck that thing dry then ask for more. They quickly caught on to that and wouldn’t let us do that very much either. From then on your sodium levels were never the same. Your pituitary gland had been removed in surgery and we weren’t aware of this until after chemo was completely done and your were struggling for your life on life support. Your endocrine labs were out of wack and you now required synthroid and hydrocortisone to live. You had to have that every day for the rest of your short, yet amazing life.

你像个冠军一样完成了脑部手术。你在18小时内就离开了ICU回到了神经层。

我们马上就知道你看不见。你很害怕，坚持让迈克或我经常陪在你身边。有时候我想要爬起来偷偷去洗手间，你就会注意到，然后用手臂拍枕头，表示你想让我立刻回去。对我们来说，哪怕是一点点的休息都很难。我甚至不想休息一下，我想永远在你身边。我想让你知道，无论发生什么，我们都会一直在那里。

我很自豪的一件事是我们从没把你一个人留在病房里迈克和我一直都在你身边。我们看到很多孩子在放学后独自呆在自己的房间里，因为父母必须回家和其他孩子在一起。我们总是确保有一个人一直和你在一起。

你对喝水的痴迷是你的身体自己调节钠水平的方式。你几乎每个小时都会醒来喝水，你会在10秒内放下12盎司的水。这是疯狂的。所有的水都要去某个地方，所以我们当然也要每小时给你换尿布。我们经常被尿湿透了醒来。伙计，这是一个累人的过程，但我愿意用我的余生来做这件事，如果这意味着你还在我们身边。

你对水的渴求是一个持续的战斗，但有时它是比别人差。但即使是在你死前的晚上，你也会在半夜起来要水喝。我们总是在床头柜上放一大杯水，这样我们就不用起身把水倒满了，但有时我们不得不这样做。有时你会对我们给你的水杯挑三拣四。有时候这是一场你真正想要的猜谜游戏。和你在一起的这几个星期，你的脾气真是太坏了!你会委派能做什么的人。我会给你倒一杯水，但我得先给爸爸再给你，反之亦然。你对每件事都是这样的(我把你不理智的行为归咎于肿瘤)，换尿布，有时你坚持要爸爸给你换，有时是我，有时是小妹妹，甚至是狗Irey给你换过一次尿布。这是棘手的! !哈哈。

我们非常害怕你要永远失明。直到你的第二轮化疗后的某一天，我们都在奶奶家，我是做滑稽的脸，并在你挥舞着我的手。我伸出舌头在你，你抄我的！我当时想嗯，也许他可以看到影子。那么不久后，你能够提供帮助重新走路，我们已经得到了你的肿瘤在你的头骨底部已经缩小到不过几格的新闻。我们很高兴。我记得getting the news and running down to the camper where Mike was sleeping because he was up all night with you (We took turns every day, we would stay from 8am-8am the next morning with visits throughout the day and then we’d switch out for the next shift, we were quite the team daddy and I) and I woke him up and told him your tumor was GONE! It was a miracle and I was soooooo happy. You were getting your sight back and things were looking up. You were starting to feel better as well. Then it was like all of a sudden you could see again. After that third round of chemo you were up and playing and running around again, despite the vomiting and diarrhea. You were such a rock star, or I should say you ARE a rock star buddy.

There are so many children out there suffering from the horrible side effects of these chemos and the radiation they are getting, this is unnecessary suffering, if anyone googled the benefits of cannabis you’d have to be a friggin idiot to not know that it’s the most natural, safest and most therapeutic plant known to man. Anyone battling cancer should use cannabis first as a treatment. What’s to lose? Try the oil for a 30-60 day trial and see how it goes…what if you didn’t need to do chemo, what if you didn’t need to lose your hair or have open brain surgery? What if you didn’t need to get your brain radiated or your boobies chopped off? What if????? There’s no what IF about it. Cannabis is curing cancer and treating hundreds of debilitating diseases right in front of our eyes and people are too scared to even know the truth. I try to let people know about this miracle plant and that possibly it’s the cure to cancer (according to the Medium and Cashy, it is). I send messages to parents fighting cancer with their babies. Nobody listens. Nobody listens until it’s too late and they want the cannabis after they’ve done all the horrible treatments, well expecting the oil to work after their body has been through the gauntlet, well it’s highly unlikely. That’s where I went wrong with you Cashy. I’m so sorry I didn’t trust daddy’s instincts and refuse the radiation. I know better now. It was the death of you. I’m so sorry. Daddy and I cried in bed the other night talking about this. You just can’t radiate a baby’s brain and expect it to fix it. No, it comes with life long side effects if you can even get them to live past a few months of the radiation. It’s sickening what these doctors call treatment. No one will even know what I’m talking about until you’ve sat with your baby and sedated them with Propophol (yes that’s what Michael Jackson OD’ on) every day for 30 days, until they’ve held their baby in their arms and they pass out like a limp rag doll, then your hurried out of the room so they can intubate him and screw that awful radiation mask down to the table with your lifeless body under it. The hurt in your heart when you walk out of this giant chamber full of special walls that soak up radiation, without your baby. Then you have to wait for an hour while they pump radiation, you follow them up to recovery where you wait till you wake up. It was the most awful feeling every time. I hated leaving you on that table alone, and cold. You always came back frozen from being in that cold room all exposed. My poor sweet baby.

辐射时间很短，只持续了6周，但这是迄今为止你所经历的最糟糕的事情通过。对此我很抱歉。你就像个骑兵，有时甚至会在麦当劳叔叔家玩攀爬架。我一直钦佩你惊人的力量。

我多么想念你这么多。发生了这么多事，在过去几个星期。我们发现为我们的狗Irey和Muffy新居。他们没有得到他们需要和确保作为赫克永远不会听我们的一个位的关注！Irey会立即跳转栅栏时，我们让她出去。她像一个党羚羊。她会整天都走了，直到她觉得是时候要回来或她饿了。于是，她去了一个农场出城的老夫妻俩谁的时间陪伴她。Muffy去我们的朋友丹的父母波兹曼。它已经真正孤独无狗，那么安静。 You always cracked me up when Irey would come and jump on the bed to sit by you. You would yell “IWEY, No, get down!” It was so cute. You would yell at Muffy too when she would come sit by you on the couch. Haha.

我很伤心最初考虑我们的房子搬出去，我们有你这么多的回忆在里面。但现在我们已经搬进，大招就是这个周末，因为我知道你和我们在一起。新房子是真棒！我们很兴奋。这是空间宽敞，有魅力。虽然厨房已经过时，厨房是我的域名，我试图让它可爱。你可以告诉它尚未从1970年开始更新大声笑。谈论墙上边境一些撒尿绿瓦。好恶！哦，虽然我不介意一个位。 I’m just happy to have so much room now!!! The backyard is basically the woods, there’s a huge ravine, and a creek with lots of trees. Deer everywhere! Colty is in little boy heaven! Yesterday morning he ran out chasing a deer and fell into the creek before school (it’s shallow up to ankles), he required an outfit change. Goofy kid. Colten and Sissy each have their own big room and YOU even have your own room!!! I was so excited about this. You never had our own room at the other house. So this is YOUR room!! I’m gonna hang our Spider-Man poster and some other things. I had an awful dream that you were wandering around the house looking for us and you were so sad. I woke up bummed.

有时我们发誓凯瑟琳·乔伊是你伪装的!10个月大的婴儿喜欢做什么与火柴盒汽车玩???乌姆并不多！我不断地发现娘娘腔玩了你的车在老房子，以及前两天我找不到她一秒钟，我发现她在你的房间里打了你的车，哈哈。然后，昨天，我发现她与你的两个创可贴玩，我不知道在那里，她甚至发现了他们，因为我们移动，一切都乱了阵脚。有你和西西只是这么多的相似之处。我喜欢那个。这几乎就像我们得到了一个做了她。卡希保持她的健康，保护她，因为我相信你。

上周，在收拾和整理凯西和凯特的东西时，迈克的一个朋友的小女孩离开了，她比凯西小几个月。她说"孩子没有自己的房间真是太糟了"我说"她现在有了"秋天说"你的另一个孩子去哪儿睡觉呢?我告诉她卡西死了(假设她不知道去世意味着什么)，她很担心，说:“你的孩子死了?”她很不高兴，过了一会儿，她走到我跟前说:“我好想念卡西。”我说:“我也是，亲爱的。”“她真是太可爱了，每次看到你这么大的孩子，我都很激动。他们看起来是那么高大，那么成熟，而且他们都说得那么好。一想到这，我的心就痛，你就该这样。到处乱跑，说着话，在泥土里玩枪和虫子。作为一个小男孩。你失去了你的生活伙伴。你被剥夺了正常的小男孩生活。我每天晚上都为你祈祷。 I’m glad we had a few good months in between. When little Autumn was born she was born with a small deformity on both her hands and feet. I remember thinking when she was born that it was the most awful thing that could happen, and I’m a nurse so obviously I’ve seen worse. I remember thinking, “thank god that didn’t happen to my sweet Cashy” who was born three months earlier. God, now I’d trade deformed legs, arms, hands, feet, cleft palette any of those for cancer. They’re all cosmetic. Then 4 months later my good friend Megan’s baby girl was born with two holes in her heart and would require surgery before she was 1. This was devastating as well, again I was so thankful it wasn’t my baby, but I hurt for my friend who was so scared for her baby. But now, Baylee is a healthy happy little 4 year old girl, who just chopped her hair off with scissors! Lol.

打包的时候，我发现了你丢失的里面有毛皮的洞洞鞋。里面塞着几只脏袜子。我闻到了它们，也能闻到你臭脚的味道。我们闻着你的脚趾头，然后说:“呸!!“当我发现你所有的鞋子时，我哭得好伤心，因为它们大多都没有匹配，现在还是单身。”让我心碎。

好了，我们终于在我们家定居，爸爸有基础的办公以及我们正在重新规划了雷鬼果酱音乐会帕托班顿在顶帽4月11日的基础！我们很高兴这个！我希望每个人都可以站出来表示支持！这将是免费向公众开放！

我的好朋友雅克在另一个周末来到镇上，因为我们计划在雪碗滑雪日。所以我们周六滑雪，把它在东碗上撕了，玩得很开心!雅克是个滑雪高手!!我们都可以从她身上吸取教训。我告诉她，她就像雪地上的天使!哈哈不幸的是，我们的一位高中好友尼基·林恩(Nikki Lynn)去世了，我们第二天参加了她的葬礼。这是一个惊人的结果，这是一个伟大的庆祝尼基的生活。妮琪，帮我保管好我的钱。我知道你是! Nikki, I hope you know how many people love and care for you and your giant heart. No more funeral for me please!!!!!

爸爸那个周末去了洛杉矶，在“高潮大麻杯”上设立了一个基金会摊位。凯西，你仍然是大麻界的名人!爸爸对这项运动如此热情，我真的很佩服他的奉献精神和毅力。我爱你，宝贝!他玩得很开心，还把你的故事传播给了更多的人!

我总是试着告诉别人你的新故事。甚至在基督教青年会，当我去锻炼的时候，我通常会分发一两个手镯，只是为了传播卡西的癌症意识!这是我最起码能做的。我想让世界上的每个人都知道，你为了让世界看到你在做着怎样的斗争。即使你离开了，你在你短暂的生命里也感动了那么多人。

昨天我的，你一个伟大的梦想，而我的工作之前睡午觉。我们在水上公园的池中,我试图让你跳,你跳,攫取了我和我们漂浮,我们有我们的手臂相互缠绕,我一直告诉你,“我爱你和想念你那么多。“太棒了。就像我们在一起快速游泳一样!喜欢它。让他们来吧，伙计!!